Unable to hear from birth, Dion expects your helping hand!

Bantu Dionisius sekarang

63.529608006672% funded

19043000

funded

10932000

to go

Kisah Dionisius

Just like being struck by lightning during the day, that's what Lucia,  Dionisius' mother, knows when her 2-year-old son suffered from severe Sensory Neural Hearing Loss (SNHL). SNHL or sensorineural hearing loss is due to an inner ear problem, also known as a neurodegenerative hearing loss. One of the causes of this disease is a viral or bacterial infection.


Doctors say that Dionisius is exposed to TORCH syndrome (Rubella & Cytomegalovirus congenital). TORCH Syndrome is an infection of a developing fetus or a newborn by one of a group of infectious agents. "TORCH" is an acronym meaning: (T) oxoplasmosis, (O) There is an Agent, (R) ubella (also known as German Measles), (C) ytomegalovirus, and (H) erpes Simplex. Infection by one of these agents (ie, Toxoplasma gondii, rubella virus, cytomegalovirus, herpes simplex virus) may cause some similar symptoms if it infects a newborn. Symptoms include difficulty eating; the presence of bleeding in a little area under the skin, the appearance of small reddish or purplish spots; enlarged liver and spleen (hepatosplenomegaly); yellowish discoloration of the skin, white eyes, and mucous membranes (jaundice); hearing disorders; eye disorders; and / or other symptoms and findings.


Because of the disease, Dionisius is advised to use a 108db frequency hearing aid (based on BERA test results). Doctors also suggested that Dionisius improve nutrition by buying nutrient-enhancing milk. Dionisius' father worked as a farmer in the village every day. Her mother takes care of the household. The cost of daily milk needs plus hearing aids for Dionysius is very expensive for them. They hope there is a heart to help Dionysius get his milk and hearing aids.


Let's help Dionisius to make his life better!


If the donations are collected, the funds will be used to purchase 108db hearing aids (right and left ear) as well as milk Pediasure 3 cans per month for 3 months.


Patient Updates Information of this patient is not available yet

Rincian Dana

Alat Medis Rp25.000.000
Nutrisi Rp2.250.000
Biaya Operasional WeCare.id Rp2.725.000

Total Rp29.975.000

Read more about WeCare.id Operational Fund

SNHL 

SNHL atau gangguan pendengaran sensorineural adalah karena adanya masalah pada telinga bagian dalam, juga dikenal sebagai gangguan pendengaran yang berhubungan dengan syaraf. Penyebab SNHL antara lain adalah: 

  • Paparan suara keras (dapat dicegah tetapi tidak dapat dibatalkan - lihat lebih lanjut tentang pencegahan)
  • Aging (presbycusis)
  • Trauma kepala
  • Virus atau penyakit
  • Penyakit telinga bagian dalam autoimun
  • Keturunan
  • Malformasi telinga bagian dalam
  • Penyakit Ménière
  • Otosklerosis
  • Tumor

TORCH Syndrome

TORCH Syndrome adalah infeksi pada janin yang sedang berkembang atau bayi baru lahir oleh salah satu dari kelompok agen infeksi. "TORCH" merupakan arti akronim: (T) oxoplasmosis, (O) Ada Agen, (R) ubella (juga dikenal sebagai Campak Jerman), (C) ytomegalovirus, dan (H) erpes Simplex. Infeksi oleh salah satu agen ini (yaitu, Toxoplasma gondii, virus rubella, cytomegalovirus, virus herpes simplex) dapat menyebabkan beberapa gejala yang mirip jika menginfeksi bayi baru lahir. Gejalanya antara lain adalah kesulitan makan; adanya pendarahan di sedikit area pada bawah kulit, munculnya bintik-bintik kemerahan atau keunguan kecil; pembesaran hati dan limpa (hepatosplenomegali); perubahan warna kekuningan pada kulit, putih mata, dan selaput lendir (penyakit kuning); gangguan pendengaran; kelainan mata; dan/atau gejala dan temuan lainnya.

Sumber: 

1. https://www.hearingloss.org/hearing-help/hearing-loss-basics/types-causes-and-treatment/

2. https://rarediseases.org/rare-diseases/torch-syndrome/ 

Want to know more about this diagnosis? Ask WeCare.id Medical Team

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Partner

Rumah Sakit Umum Pusat Nasional Dr. Cipto Mangunkusumo
Jl. Diponegoro No. 71, Senen, Jakarta Pusat, Daerah Khusus Ibukota Jakarta, Indonesia

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