Farel

53801100

funded

-5374100

to go

134

donors

100% funded
Fully funded

Butuh terapi hormon untuk keberlangsungan hidupnya, Farel Membutuhkan Pertolonganmu Segera!

Farel - menderita Obstructive Sleep Apnea dan Prader-Willi Syndrome

Farel, a patient suffering from life-threatening sleep apnea, needs your help!


Farel is suffering from obesity and his weight has been steadily increasing. The four-year-old toddler now weighs as much as an adult. With his condition, snoring is a normal occurence for Farel. However, his parents became extremely concerned when they find Farel often stops breathing in his sleep. His parents brought Farel to a doctor to get his condition checked.



Doctors diagnosed Farel with Prader Willi Syndrome and Obstructive Sleep Apnea. Prader Willi Syndrome is a rare, chronic genetic disorder that manifests itself in the form of weakened muscle and insatiable appetite that drives obesity as in Farel's case. Meanwhile,
Obstructive Sleep Apnea is a life-threatening condition where people stop breathing in their sleep for 10-45 seconds due to obstructions in their breathing pathway. Farel has been going back-and-forth to hospitals to get treatment for lung infections and lowered oxygen levels due to the complications from OSA. 

Farel's concerning condition requires a lot of attention on the disease analysis and treatments. Farel needs to undergo various check-ups to diagnose the complications he is suffering from, such as DNA analysis and Polysomnography. Other than that, the treatment recommended by doctors includes having a CPAP equipment at home to reduce the occurrence of breathing pauses as well as a diet that requires a special milk (Tropicana Slim).


Farel's parents are worried about the mounting bills that Farel's treatment and diagnosis accumulates. His father is a private employee pensioner and his mother a Jakarta civil servant. Their family income is barely sufficient to pay for their family's daily necessities and Farel's costly treatment and needs.

Currently, Farel needs growth hormone therapy in order to grow normally as well as reduce the risk of his disease's complications. His parents are going to be so much burdened by the expense of this growth hormone therapy since it reaches eight million rupiah per month. Therefore, Farel needs routine donation to get his medication. Let's help Farel by donating starts from Rp 100.000 per month so he can live normally. Register yourself pn  bit.ly/form-farel if you want to donate. 


Let us help Farel recover from his rare condition so that he can live a normal life as a toddler!

If this patient receives donations….
Farel will get a CPAP equipment at home to assist with ensuring his breathing

Fund allocation plan
Funds will be used to pay for a CPAP equipment that costs Rp 30.600.000,00

Growth hormone therapy = Rp 15.000.000 per month. We are currently looking for more funding for Farel's 2 years of therapy, so in total = Rp 360.000.000 is needed.

WeCare.id operational cost & patient marketing campaign = Rp 3.825.000,00


  • Alat Medis

    Rp30.600.000

    CPAP

  • Obat-Obatan

    Rp8.000.000

    Terapi growth hormone

  • Biaya Operasional WeCare.id

    Rp3.825.000

    Biaya operasional WeCare.id & marketing campaign pasien

Read more about WeCare.id Operational Fund

Sindrom Prader-Willi adalah salah satu kelainan genetika. Kondisi yang jarang terjadi ini dapat menyebabkan berbagai gangguan pada perkembangan fisik, psikologis, maupun tingkah laku. Kelainan kromosom tersebut akan mengakibatkan terganggunya perkembangan dan fungsi hipotalamus. Bagian otak ini berperan penting dalam berbagai fungsi tubuh, seperti mengendalikan pelepasan hormon dan selera makan.

Beberapa gejala yang umumnya dialami oleh penderita sindrom ini antara lain: hipotonia (buruknya tonus otot), perkembangan organ seksual yang terhambat, senantiasa merasa lapar, tubuh yang pendek, gangguan belajar, dan gangguan tidur.

Hingga saat ini, belum ada langkah pengobatan yang bisa menyembuhkan sindrom Prader-Willi. Penanganan yang dilakukan hanya bertujuan untuk mengendalikan gejala serta gangguan yang dialami oleh penderita.

Penderita sindrom ini membutuhkan bantuan dalam memenuhi kebutuhan dasarnya dan dalam mengatasi gejala-gejalanya hingga dewasa. Pemantauan dari dokter akan diperlukan secara berkala agar metode penanganan bisa disesuaikan dengan perkembangan atau perubahan gangguan yang dialami oleh penderita.



Sumber: Alodokter.com

Want to know more about this diagnosis? Ask WeCare.id Medical Team

Patient Updates

Picture

Rabu, 23 Agustus 2017

Farel telah mendapatkan CPAP

Bantuan dana untuk Farel telah terkumpul sesuai kebutuhan dan digunakan untuk pembelian CPAP.

CPAP sudah dapat digunakan oleh Farel di rumah dan gejala gangguan tidurnya berkurang.

Terima kasih kepada para donatur.


Picture

Selasa, 19 Desember 2017

Penggalangan Dana untuk Donatur Tetap

Selain CPAP, Farel memerlukan terapi growth hormone untuk mengatai gejala makan, gangguan mental, gangguan perkembangan, dan gangguan intelektualnya.

Ia memerlukan terapi ini sampai berusia 15 tahun. Sayangnya, terapi ini sangat mahal dan tidak ditanggung oleh BPJS. Terapi growth hormone memerlukan biaya 8 juta per bulan yang tidak sanggup dipenuhi oleh kedua orangtuanya.

Oleh karena itu, Farel membutuhkan bantuan dari donatur tetap untuk memenuhi kebutuhannya ini. Ayo bantu Farel dengan menjadi donatur tetap dengan mengirimkan email ke support@wecare.id.

  


Picture

Sabtu, 31 Maret 2018

Disburse Donation

Penggalangan dana untuk Farel dilakukan untuk kebutuhan terapi hormon. Dokter memprediksi terapi ini harus dilakukan hingga usianya 15 tahun. Ketika sejumlah dana sudah terkumpul, wecare.id segera menyalurkan bantuan tersebut ke rumah sakit agar Farel dapat diterapi. Saat ini kondisi Farel semakin membaik. Dalam 2 minggu terakhir, berat badannya sudah turun 1 kg. Bocah usia 5 tahun ini pun sudah mulai bisa belajar berjalan. Kualitas hidupnya akan semakin membaik setelah diterapi growth hormone.



Hospitalized at

Rumah Sakit Umum Pusat Nasional Dr. Cipto Mangunkusumo
Jl. Diponegoro No. 71, Senen, Jakarta Pusat, Daerah Khusus Ibukota Jakarta, Indonesia

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