Having chronic kidney disease and malnutrition, Viara needs your helping hand!

Bantu Viara sekarang

47.028413050364% funded

22270305

funded

25084695

to go

Kisah Viara

Viara, a girl from Situbondo, East Java, has been struggling for many years. At the end of 2011, Viara had an appendectomy, but after the surgery, there was an intestinal adhesion many times which is up to 7 surgeries, and at the 4th operation, Viara's abdominal sutures were released so that the intestine decomposed out. The intestine must be cut more than 1 meter and must be removed by colostomy, and at that time Viara gone coma in the ICU for 50 days. After being released from the ICU, Viara was diagnosed with systemic lupus erythematosus, malnutrition, cerebral hemorrhage and kidney failure. As a result of kidney failure she suffered, she had to run hemodialysis three times a week until now.


In 2016, Viara had the 8th operation, namely intestinal connection. The operating costs are obtained by selling the novel "My Little Girl" story about the journey of Viara written by Viara's own father as an initiative to seek funding for Viara's treatment because previously the father's assets had run out for medical expenses.

Seeing Viara whose condition was getting heavier due to her kidney complications, the doctor advised Viara to immediately operate a kidney transplant with her own mother's donor. The operating costs require very much funds and are not properly covered by insurance.


Viara's condition is not as strong and cheerful as it used to be, now her daily life can hardly be separated from oxygen and moaning in pain every night. Viara's body becomes thinner and she must even use wheelchairs as she hardly can walk. Viara's parents have tried their best as much as possible. In between hemodialysis schedules, Viara creates handicrafts such as bracelets, necklaces, bags, etc., which are sold in hospitals. Viara also sells it online in hopes of helping her father in collecting funds for her kidney transplant. Viara always encouraged herself by singing "Don't Give Up" because for her, suffering did not always have to be greeted with tears.


Currently, Viara requires the cost of HLA and DSA examinations for kidney transplants and several other medical needs. Viara's parents have tried their best to collect costs.



Let's help realize Viara's hopes and dreams for kidney transplants so she can go to school and play with her friends!

Patient Updates Information of this patient is not available yet

Rincian Dana

Pemeriksaan Penunjang Rp30.000.000
Nutrisi Rp3.600.000
Akomodasi Rp700.000
Obat-Obatan Rp6.000.000
Transportasi Rp50.000
Alat Medis Rp2.700.000
Biaya Operasional WeCare.id Rp4.305.000

Total Rp47.355.000

Read more about WeCare.id Operational Fund

LUPUS SISTEMIK ERITEMATOSUS


Systemic Lupus Erythematosus atau biasa disingkat SLE adalah salah satu jenis penyakit lupus yang paling banyak terjadi di dunia.

SLE menyebabkan peradangan di hampir seluruh organ tubuh, seperti sendi, kulit, paru-paru, jantung, pembuluh darah, ginjal, sistem saraf, dan sel-sel darah.

Kebanyakan orang pengidap lupus jenis  dapat melakukan aktivitas sehari-hari tanpa kendala dengan melakukan pengobatan yang rutin.

Seberapa umumkah penyakit ini?
SLE adalah jenis penyakit lupus yang paling banyak jumlah kasusnya. Penyakit ini bisa dialami oleh siapa saja tanpa membedakan jenis kelamin dan usia. Pria, wanita, tua atau muda sama-sama bisa mengidap lupus.

Meski begitu, berbagai penelitian menyebutkan bahwa wanita cenderung lebih mungkin terkena SLE dibanding pria.

Tanda-tanda & gejala
Apa saja tanda dan gejala systemic lupus erythematosus (SLE)?
Pada dasarnya setiap orang bisa saja mengalami gejala penyakit lupus yang berbeda-beda tergantung usia, keparahan penyakit, riwayat medis, serta kondisi tubuh masing-masing.

Gejala penyakit lupus juga biasanya dapat berubah-ubah setiap waktu.

Namun, ada beberapa tanda dan gejala khas dari penyakit lupus yang mungkin bisa Anda amati dan waspadai. Beberapa tanda dan gejala khas SLE adalah:

  • Lemas, lesu, dan tidak bertenaga
  • Nyeri sendi dan bengkak atau kekakuan, biasanya di tangan, pergelangan tangan dan lutut
  • Memiliki bintil merah pada bagian tubuh yang sering terkena matahari, seperti wajah (pipi dan hidung)
  • Fenomena Raynaud membuat jari berubah warna dan menjadi terasa sakit ketika terkena dingin
  • Sakit kepala
  • Rambut rontok
  • Pleurisy (radang selaput paru-paru), yang dapat membuat bernapas terasa menyakitkan, disertai sesak napas
  • Bila ginjal terkena dapat menyebabkan tekanan darah tinggi dan gagal ginjal
Gejala SLE yang disebutkan di atas mungkin terlihat mirip dengan gejala penyakit lain. Oleh karena itu, bila Anda memiliki kekhawatiran akan sebuah gejala tertentu, konsultasikanlah dengan dokter Anda. Dokter mungkin akan menyarankan Anda untuk melakukan serangkaian tes guna memastikan diagnosis yang akurat.


GAGAL GINJAL KRONIS

Penyakit ginjal kronis (PGK) atau gagal ginjal kronis (GGK) adalah kondisi saat fungsi ginjal menurun secara bertahap karena kerusakan ginjal. Secara medis, gagal ginjal kronis didefinisikan sebagai penurunan laju penyaringan atau filtrasi ginjal selama 3 bulan atau lebih.

Ginjal berfungsi menyaring limbah dan kelebihan cairan dari darah sebelum dibuang melalui cairan urine. Setiap hari, kedua ginjal menyaring sekitar 120-150 liter darah, dan menghasilkan sekitar 1-2 liter urine. Dalam setiap ginjal, terdapat unit penyaring atau nefron yang terdiri dari glomerulus dan tubulus. Glomerulus menyaring cairan dan limbah untuk dikeluarkan, serta mencegah keluarnya sel darah dan molekul besar yang berbentuk protein. Selanjutnya, saat darah melewati unit penyaring  tubulus, mineral yang dibutuhkan tubuh disaring kembali sedangkan sisanya dibuang sebagai limbah. Selain menyaring limbah dan kelebihan cairan, fungsi ginjal lain yang penting dalam tubuh, di antaranya:

  • Menghasilkan enzim renin yang menjaga tekanan darah dan kadar garam dalam tubuh tetap normal.
  • Membuat hormon eritropoietin yang merangsang sumsum tulang memproduksi sel darah merah.
  • Memproduksi vitamin Ddalam bentuk aktif yang menjaga kesehatan tulang.
Dalam kondisi gagal ginjal kronis, cairan dan elektrolit, serta limbah dapat menumpuk dalam tubuh. Gejala dapat terasa lebih jelas saat fungsi ginjal sudah semakin menurun. Pada tahap akhir GGK, kondisi penderita dapat berbahaya jika tidak ditangani dengan terapi pengganti ginjal, salah satunya cuci darah.




Sumber: 
1. https://hellosehat.com/penyakit/lupus-eritematosus-sistemik/
2. https://www.alodokter.com/gagal-ginjal-kronis

Want to know more about this diagnosis? Ask WeCare.id Medical Team

Total disbursement dana untuk pasien: IDR 0

Detil transaksi pasien:

Date Transaction Amount (IDR) Balance (IDR)
2019-03-21 Donation to patient 45.000 22.270.305
2019-03-20 Donation to patient 9.000 22.225.305
2019-03-20 Donation to patient 10.000.000 22.216.305
2019-03-20 Donation to patient 180.000 12.216.305
2019-03-19 Donation to patient 90.000 12.036.305
2019-03-19 Donation to patient 18.000 11.946.305
2019-03-19 Donation to patient 90.000 11.928.305
2019-03-18 Donation to patient 270.000 11.838.305
2019-03-16 Donation to patient 90.000 11.568.305
2019-03-15 Donation to patient 135.000 11.478.305
2019-03-15 Donation to patient 9.000 11.343.305
2019-03-15 Donation to patient 135.000 11.334.305
2019-03-15 Donation to patient 90.000 11.199.305
2019-03-14 Donation to patient 225.000 11.109.305
2019-03-13 Donation to patient 90.000 10.884.305
2019-03-12 Donation to patient 90.000 10.794.305
2019-03-10 Donation to patient 22.500 10.704.305
2019-03-10 Donation to patient 270.000 10.681.805
2019-03-08 Donation to patient 45.000 10.411.805
2019-03-08 Donation to patient 112.500 10.366.805
2019-03-08 Donation to patient 45.000 10.254.305
2019-03-06 Donation to patient 72.000 10.209.305
2019-03-06 Donation to patient 90.000 10.137.305
2019-03-06 Donation to patient 135.000 10.047.305
2019-03-05 Donation to patient 540.000 9.912.305
2019-03-05 Donation to patient 720.000 9.372.305
2019-03-03 Donation to patient 9.000 8.652.305
2019-03-01 Donation to patient 900.000 8.643.305
2019-03-01 Donation to patient 50.000 7.743.305
2019-03-01 Donation to patient 50.000 7.693.305
2019-02-28 Donation to patient 45.000 7.643.305
2019-02-28 Donation to patient 45.000 7.598.305
2019-02-27 Donation to patient 45.000 7.553.305
2019-02-27 Donation to patient 225.000 7.508.305
2019-02-27 Donation to patient 9.000 7.283.305
2019-02-26 Donation to patient 180.000 7.274.305
2019-02-25 Donation to patient 225.000 7.094.305
2019-02-25 Donation to patient 45.000 6.869.305
2019-02-25 Donation to patient 45.000 6.824.305
2019-02-25 Donation to patient 90.000 6.779.305
2019-02-24 Donation to patient 180.000 6.689.305
2019-02-23 Donation to patient 450.000 6.509.305
2019-02-22 Donation to patient 49.905 6.059.305
2019-02-22 Donation to patient 270.000 6.009.400
2019-02-22 Donation to patient 18.900 5.739.400
2019-02-21 Donation to patient 9.000 5.720.500
2019-02-21 Donation to patient 45.000 5.711.500
2019-02-21 Donation to patient 180.000 5.666.500
2019-02-20 Donation to patient 360.000 5.486.500
2019-02-19 Donation to patient 180.000 5.126.500
2019-02-18 Donation to patient 9.000 4.946.500
2019-02-17 Donation to patient 225.000 4.937.500
2019-02-17 Donation to patient 9.000 4.712.500
2019-02-16 Donation to patient 9.000 4.703.500
2019-02-16 Donation to patient 45.000 4.694.500
2019-02-16 Donation to patient 90.000 4.649.500
2019-02-15 Donation to patient 81.000 4.559.500
2019-02-15 Donation to patient 27.000 4.478.500
2019-02-15 Donation to patient 9.000 4.451.500
2019-02-13 Donation to patient 9.000 4.442.500
2019-02-05 Donation to patient 9.000 4.433.500
2019-02-03 Donation to patient 45.000 4.424.500
2019-02-02 Donation to patient 225.000 4.379.500
2019-02-01 Donation to patient 45.000 4.154.500
2019-02-01 Donation to patient 90.000 4.109.500
2019-02-01 Donation to patient 45.000 4.019.500
2019-01-28 Donation to patient 90.000 3.974.500
2019-01-27 Donation to patient 90.000 3.884.500
2019-01-27 Donation to patient 135.000 3.794.500
2019-01-22 Donation to patient 100.000 3.659.500
2019-01-22 Donation to patient 450.000 3.559.500
2019-01-22 Donation to patient 18.000 3.109.500
2019-01-19 Donation to patient 900.000 3.091.500
2019-01-19 Donation to patient 450.000 2.191.500
2019-01-19 Donation to patient 225.000 1.741.500
2019-01-18 Donation to patient 22.500 1.516.500
2019-01-18 Donation to patient 180.000 1.494.000
2019-01-18 Donation to patient 225.000 1.314.000
2019-01-18 Donation to patient 180.000 1.089.000
2019-01-18 Donation to patient 9.000 909.000
2019-01-17 Donation to patient 900.000 900.000

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Rumah Sakit Umum Pusat Nasional Dr. Cipto Mangunkusumo
Jl. Diponegoro No. 71, Senen, Jakarta Pusat, Daerah Khusus Ibukota Jakarta, Indonesia

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DONASI UNIVERSAL

#UNTUKSEMUA (7) - DKI Jakarta
Oleh Medikator Medikator WeCare.id
0.7973613% funded
7973613 funded
992026387 to go

Prematur, BBLR

Bayi Bu Ati (0) - Jawa Barat
Oleh Medikator Medikator RS Santo Borromeus
27.371128484848% funded
22581181 funded
59918819 to go

Gagal Ginjal Kronis

Viara (14) - Jawa Timur
Oleh Medikator Medikator WeCare.id
47.028413050364% funded
22270305 funded
25084695 to go