Suffering from genetic disorders, Miracle expects your helping hand!

Bantu Miracle sekarang

59.27343313354% funded

19683332

funded

13524348

to go

Kisah Miracle

Hope there is a miracle, as the name implies, Miracle. Miracle is the fifth child of 6 siblings. The child who comes from a modest family experienced repeated vomiting since birth. Her body was limp and her skin looked darkened. Miracle was diagnosed with congenital adrenal hyperplasia (HAK). Congenital adrenal hyperplasia (HAK) is a series of genetic disorders that affect the work of the adrenal glands. The adrenal gland is a gland located above the kidney. Miracle's four siblings also suffered from the disease, even one of her older siblings had died due to an adrenal crisis.


Miracle gets therapy using hormone replacement drugs. She should routinely control every month to the hospital for monitoring, but it is often postponed due to transportation costs and the unavailability of her parents who also have to take care of the other 5 children. Miracle food intake is also lacking due to economic problems. Her father's income as an online motorcycle taxi driver is uncertain and the many other family members' needs caused her to take insufficient nutrition. Miracle also experienced developmental delays due to the nutrition insufficiency and lack of stimulation.


This poor 1 year old toddler needs help to buy medicines that she should take regularly. These medicines must be purchased outside the hospital and not included in the national formulary. Because of the detrimental nutritional status, Miracle also needs nutrition-enhancing milk. In addition, she also needs help to pay the transportation costs to the hospital so that she can control regularly.


Let's help lighten the Miracle's burden!


Patient Updates Information of this patient is not available yet

Rincian Dana

Transportasi Rp3.600.000
Obat-Obatan Rp5.788.800
Nutrisi Rp3.600.000
Pemeriksaan Penunjang Rp17.200.000
Biaya Operasional WeCare.id Rp3.018.880

Total Rp33.207.680

Read more about WeCare.id Operational Fund

HIPERPLASIA ADRENAL KONGENINTAL

Hiperplasia adrenal kongenital (HAK) adalah serangkaian kelainan genetika yang memengaruhi kerja kelenjar adrenal. Kelenjar adrenal adalah kelenjar yang terletak di atas ginjal.

Kelenjar adrenal memproduksi hormon-hormon penting dalam tubuh. Pada KAH, gangguan terjadi pada produksi satu atau lebih dari tiga hormon berikut:

Kortisol. Hormon yang berfungsi untuk mengatur respon tubuh terhadap penyakit atau stres.
Mineralokortikoid. Misalnya aldosteron, yang berfungsi untuk mengendalikan kadar natrium dan kalium
Androgen. Misalnya testosteron, yang berfungsi sebagai hormon seks.
Umumnya gangguan yang muncul adalah berkurangnya produksi kortisol dan meningkatnya produksi androgen.

Jenis Hiperplasia Adrenal Kongenital
HAK dapat menyerang laki-laki maupun perempuan. Namun karena gejala HAK pada perempuan lebih jelas dan lebih mudah terdeteksi, umumnya penderita mendapatkan penanganan sejak dini sehingga tingkat keparahannya tidak seberat pada penderita laki-laki dan jarang menimbulkan komplikasi.

Hiperplasia adrenal kongenital terbagi menjadi 2 jenis, yaitu klasik dan nonklasik. HAK klasik sendiri dibagi lagi menjadi tipe salt-losing dan non-salt-losing.

HAK klasik lebih parah daripada HAK nonklasik, dan biasanya sudah terdeteksi pada saat pemeriksaan skrining bayi baru lahir. Bayi perempuan dengan kelainan ini dapat dengan mudah terdeteksi pada waktu lahir, karena adanya kelainan bentuk organ kelaminnya.


Sumber: https://www.alodokter.com/hiperplasia-adrenal-kongenital

Want to know more about this diagnosis? Ask WeCare.id Medical Team

Total disbursement dana untuk pasien: IDR 5.698.479

Detil transaksi pasien:

Date Transaction Amount (IDR) Balance (IDR)
2019-03-26 Donation to patient 45.000 13.984.853
2019-03-21 Bantuan susu Miracle ke-6 -750.000 13.939.853
2019-03-21 Donation to patient 49.288 14.689.853
2019-03-17 Donation to patient 18.000 14.640.565
2019-03-15 Donation to patient 22.500 14.622.565
2019-03-14 Bantuan susu Miracle ke-5 -817.000 14.600.065
2019-03-14 Donation to patient 25.288 15.417.065
2019-03-14 Donation to patient 180.000 15.391.777
2019-03-12 Donation to patient 67.500 15.211.777
2019-03-10 Donation to patient 18.000 15.144.277
2019-03-02 Donation to patient 45.000 15.126.277
2019-02-27 Donation to patient 45.000 15.081.277
2019-02-27 Donation to patient 90.000 15.036.277
2019-02-25 Donation to patient 90.000 14.946.277
2019-02-22 Donation to patient 13.500 14.856.277
2019-02-21 Donation to patient 180.000 14.842.777
2019-02-21 Donation to patient 180.000 14.662.777
2019-02-20 Donation to patient 90.000 14.482.777
2019-02-19 Donation to patient 18.000 14.392.777
2019-02-18 Bantuan susu Miracle ke-4 -550.000 14.374.777
2019-02-18 Donation to patient 41.288 14.924.777
2019-02-12 Donation to patient 90.000 14.883.489
2019-02-11 Donation to patient 45.000 14.793.489
2019-02-09 Donation to patient 90.000 14.748.489
2019-02-08 Donation to patient 90.000 14.658.489
2019-02-04 Donation to patient 90.000 14.568.489
2019-02-01 Donation to patient 900.000 14.478.489
2019-02-01 Donation to patient 18.000 13.578.489
2019-01-30 Donation to patient 180.000 13.560.489
2019-01-29 Donation to patient 90.000 13.380.489
2019-01-28 Donation to patient 45.000 13.290.489
2019-01-26 Donation to patient 45.000 13.245.489
2019-01-25 Donation to patient 72.000 13.200.489
2019-01-24 Donation to patient 90.000 13.128.489
2019-01-24 Donation to patient 90.000 13.038.489
2019-01-24 Donation to patient 180.000 12.948.489
2019-01-24 Donation to patient 45.000 12.768.489
2019-01-24 Donation to patient 450.000 12.723.489
2019-01-23 Donation to patient 9.000 12.273.489
2019-01-23 Donation to patient 18.000 12.264.489
2019-01-23 Donation to patient 45.000 12.246.489
2019-01-23 Donation to patient 243.000 12.201.489
2019-01-23 Donation to patient 9.000 11.958.489
2019-01-23 Donation to patient 45.000 11.949.489
2019-01-23 Donation to patient 51.288 11.904.489
2019-01-23 Bantuan Miracle ke-3 -1.828.779 11.853.201
2019-01-22 Donation to patient 225.000 13.681.980
2019-01-22 Donation to patient 9.000 13.456.980
2019-01-22 Donation to patient 22.500 13.447.980
2019-01-22 Donation to patient 67.500 13.425.480
2019-01-22 Donation to patient 9.000 13.357.980
2019-01-22 Donation to patient 18.000 13.348.980
2019-01-22 Donation to patient 450.000 13.330.980
2019-01-22 Donation to patient 135.000 12.880.980
2019-01-22 Donation to patient 900.000 12.745.980
2019-01-22 Donation to patient 22.500 11.845.980
2019-01-22 Donation to patient 45.000 11.823.480
2019-01-22 Donation to patient 225.000 11.778.480
2019-01-22 Donation to patient 180.000 11.553.480
2019-01-22 Donation to patient 180.000 11.373.480
2019-01-22 Donation to patient 9.000 11.193.480
2019-01-22 Donation to patient 45.000 11.184.480
2019-01-22 Donation to patient 9.000 11.139.480
2019-01-22 Donation to patient 45.000 11.130.480
2019-01-22 Donation to patient 18.000 11.085.480
2019-01-22 Donation to patient 225.000 11.067.480
2019-01-22 Donation to patient 450.000 10.842.480
2019-01-18 Donation to patient 90.000 10.392.480
2019-01-17 Donation to patient 45.000 10.302.480
2019-01-16 Donation to patient 90.000 10.257.480
2019-01-16 Donation to patient 90.000 10.167.480
2019-01-16 Donation to patient 300.000 10.077.480
2019-01-13 Donation to patient 18.000 9.777.480
2019-01-12 Donation to patient 9.000 9.759.480
2019-01-10 Donation to patient 1.000.000 9.750.480
2019-01-08 Donation to patient 900.000 8.750.480
2019-01-08 Donation to patient 45.000 7.850.480
2019-01-06 Donation to patient 90.000 7.805.480
2019-01-05 Donation to patient 18.000 7.715.480
2019-01-04 Donation to patient 45.000 7.697.480
2019-01-04 Donation to patient 90.000 7.652.480
2019-01-04 Donation to patient 90.000 7.562.480
2019-01-03 Donation to patient 45.000 7.472.480
2019-01-02 Donation to patient 45.000 7.427.480
2018-12-29 Donation to patient 900.000 7.382.480
2018-12-28 Donation to patient 90.000 6.482.480
2018-12-28 Donation to patient 135.000 6.392.480
2018-12-28 Donation to patient 90.000 6.257.480
2018-12-24 Donation to patient 22.500 6.167.480
2018-12-23 Donation to patient 720.000 6.144.980
2018-12-23 Donation to patient 18.000 5.424.980
2018-12-20 Donation to patient 45.000 5.406.980
2018-12-18 Donation to patient 45.000 5.361.980
2018-12-18 Donation to patient 250.000 5.316.980
2018-12-18 Donation to patient 27.000 5.066.980
2018-12-17 Donation to patient 180.000 5.039.980
2018-12-16 Donation to patient 270.000 4.859.980
2018-12-15 Donation to patient 90.000 4.589.980
2018-12-15 Donation to patient 90.000 4.499.980
2018-12-14 Donation to patient 18.000 4.409.980
2018-12-13 Donation to patient 150.000 4.391.980
2018-12-12 Donation to patient 180.000 4.241.980
2018-12-12 Donation to patient 180.000 4.061.980
2018-12-12 Donation to patient 90.000 3.881.980
2018-12-12 Donation to patient 90.000 3.791.980
2018-12-12 Donation to patient 90.000 3.701.980
2018-12-11 Donation to patient 45.000 3.611.980
2018-12-11 Donation to patient 45.000 3.566.980
2018-12-11 Donation to patient 9.000 3.521.980
2018-12-11 Donation to patient 45.000 3.512.980
2018-12-11 Donation to patient 180.000 3.467.980
2018-12-10 Donation to patient 180.000 3.287.980
2018-12-08 Donation to patient 90.000 3.107.980
2018-12-05 Donation to patient 45.000 3.017.980
2018-12-05 Donation to patient 9.000 2.972.980
2018-12-03 Donation to patient 90.000 2.963.980
2018-12-02 Donation to patient 90.000 2.873.980
2018-12-02 Donation to patient 9.000 2.783.980
2018-12-01 Donation to patient 180.000 2.774.980
2018-12-01 Donation to patient 90.000 2.594.980
2018-12-01 Donation to patient 180.000 2.504.980
2018-12-01 Donation to patient 18.000 2.324.980
2018-11-30 Donation to patient 90.000 2.306.980
2018-11-30 Donation to patient 90.000 2.216.980
2018-11-30 Donation to patient 450.000 2.126.980
2018-11-30 Donation to patient 67.500 1.676.980
2018-11-30 Donation to patient 67.500 1.609.480
2018-11-30 Donation to patient 90.000 1.541.980
2018-11-30 Donation to patient 18.000 1.451.980
2018-11-21 Donation to patient 9.005 1.433.980
2018-11-20 Donation to patient 9.049 1.424.975
2018-11-14 Donation to patient 80.100 1.415.926
2018-11-09 Bantuan obat Miracle week 2 -685.700 1.335.826
2018-11-09 Donation to patient 863.913 2.021.526
2018-11-09 Donation to patient 450.000 1.157.613
2018-11-06 Donation to patient 45.000 707.613
2018-11-05 Donation to patient 180.000 662.613
2018-11-05 Donation to patient 900.000 482.613
2018-11-02 Donation to patient 450.000 -417.387
2018-11-01 Donation to patient 9.607 -867.387
2018-10-31 Donation to patient 45.006 -876.994
2018-10-31 Donation to patient 45.000 -922.000
2018-09-21 Bantuan pemeriksaan lab 17 ohp Miracle -1.067.000 -967.000
-0001-11-30 Donation to patient 100.000 100.000

Fundraiser


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Partner

Rumah Sakit Umum Pusat Nasional Dr. Cipto Mangunkusumo
Jl. Diponegoro No. 71, Senen, Jakarta Pusat, Daerah Khusus Ibukota Jakarta, Indonesia

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