Almost the entire family suffering from adrenal hyperplasia, let's help lower Mendy's burden!

Bantu Mendy J sekarang

42.861271850367% funded

14233234

funded

18974446

to go

Diajukan oleh resyana putri nugraheni
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Kisah Mendy J

If one of family member suffers from a serious illness, it could sadden the whole family members. You can imagine if the ones who sick are almost all family members as experienced by the Mendy family. Almost all of her siblings suffer from serious congenital diseases. Mendy was diagnosed with congenital adrenal hyperplasia, a congenital disease with imperfections in the formation of enzymes and hormones so Mendy needed medication to take every day so that her body could function normally.


Unfortunately, the medicine needed by Mendy are not included in the national formulary of national insurance so they cannot purchase it for free. Mendy was also diagnosed with malnutrition and delay in growth and development so that she needed immediate treatment from both the endocrinology and nutrition division. Therefore, Mendy must routinely go to the hospital which also requires transportation costs which, if in total, are quite expensive.


Mendy's parents could not afford to have to buy medicine continuously. Her father is an online motorcycle taxi driver, while the mother does not work. With the condition of having 5 children with daily needs and school fees, Mendy's father's income as a motorcycle taxi driver is obviously not enough to buy medicine. The family who lived in a small rented house had to work together to be able to take Mendy and her sister Miracle to the hospital.


Let's help ease Mendy's burden!


Patient Updates Information of this patient is not available yet

Rincian Dana

Transportasi Rp3.600.000
Obat-Obatan Rp5.788.800
Nutrisi Rp3.600.000
Pemeriksaan Penunjang Rp17.200.000
Biaya Operasional WeCare.id Rp3.018.880

Total Rp33.207.680

Read more about WeCare.id Operational Fund

HIPERPLASIA ADRENAL KONGENINTAL

Hiperplasia adrenal kongenital (HAK) adalah serangkaian kelainan genetika yang memengaruhi kerja kelenjar adrenal. Kelenjar adrenal adalah kelenjar yang terletak di atas ginjal.

Kelenjar adrenal memproduksi hormon-hormon penting dalam tubuh. Pada KAH, gangguan terjadi pada produksi satu atau lebih dari tiga hormon berikut:

Kortisol. Hormon yang berfungsi untuk mengatur respon tubuh terhadap penyakit atau stres.
Mineralokortikoid. Misalnya aldosteron, yang berfungsi untuk mengendalikan kadar natrium dan kalium
Androgen. Misalnya testosteron, yang berfungsi sebagai hormon seks.
Umumnya gangguan yang muncul adalah berkurangnya produksi kortisol dan meningkatnya produksi androgen.

Jenis Hiperplasia Adrenal Kongenital
HAK dapat menyerang laki-laki maupun perempuan. Namun karena gejala HAK pada perempuan lebih jelas dan lebih mudah terdeteksi, umumnya penderita mendapatkan penanganan sejak dini sehingga tingkat keparahannya tidak seberat pada penderita laki-laki dan jarang menimbulkan komplikasi.

Hiperplasia adrenal kongenital terbagi menjadi 2 jenis, yaitu klasik dan nonklasik. HAK klasik sendiri dibagi lagi menjadi tipe salt-losing dan non-salt-losing.

HAK klasik lebih parah daripada HAK nonklasik, dan biasanya sudah terdeteksi pada saat pemeriksaan skrining bayi baru lahir. Bayi perempuan dengan kelainan ini dapat dengan mudah terdeteksi pada waktu lahir, karena adanya kelainan bentuk organ kelaminnya.


Sumber: https://www.alodokter.com/hiperplasia-adrenal-kongenital

Want to know more about this diagnosis? Ask WeCare.id Medical Team

Total disbursement dana untuk pasien: IDR 11.894.567

Detil transaksi pasien:

Date Transaction Amount (IDR) Balance (IDR)
2019-02-19 Donation to patient 9.000 2.338.667
2019-02-18 Bantuan susu & cek lab Mendy J ke-4 -7.997.000 2.329.667
2019-02-18 Donation to patient 1.352.289 10.326.667
2019-02-17 Donation to patient 9.000 8.974.378
2019-02-15 Donation to patient 90.000 8.965.378
2019-02-13 Donation to patient 135.000 8.875.378
2019-02-13 Donation to patient 140.000 8.740.378
2019-02-13 Donation to patient 1.900.000 8.600.378
2019-02-13 Donation to patient 180.000 6.700.378
2019-02-12 Donation to patient 900.000 6.520.378
2019-02-12 Donation to patient 9.000 5.620.378
2019-02-12 Donation to patient 9.000 5.611.378
2019-02-12 Donation to patient 18.000 5.602.378
2019-02-12 Donation to patient 9.000 5.584.378
2019-02-12 Donation to patient 9.000 5.575.378
2019-02-12 Donation to patient 225.000 5.566.378
2019-02-12 Donation to patient 9.000 5.341.378
2019-02-12 Donation to patient 9.000 5.332.378
2019-02-12 Donation to patient 135.000 5.323.378
2019-02-12 Donation to patient 450.000 5.188.378
2019-02-12 Donation to patient 90.000 4.738.378
2019-02-12 Donation to patient 45.000 4.648.378
2019-02-12 Donation to patient 9.000 4.603.378
2019-02-12 Donation to patient 90.000 4.594.378
2019-02-12 Donation to patient 9.000 4.504.378
2019-02-06 Donation to patient 193.500 4.495.378
2019-02-05 Donation to patient 18.000 4.301.878
2019-01-30 Donation to patient 90.000 4.283.878
2019-01-26 Donation to patient 4.698.700 4.193.878
2019-01-26 Donation to patient 9.000 -504.822
2019-01-23 Donation to patient 23.089 -513.822
2019-01-23 Bantuan Mendy J ke-3 -2.225.567 -536.911
2019-01-03 Donation to patient 45.000 1.688.656
2018-12-27 Donation to patient 500.000 1.643.656
2018-12-25 Donation to patient 45.000 1.143.656
2018-12-24 Donation to patient 27.000 1.098.656
2018-12-21 Donation to patient 9.000 1.071.656
2018-12-17 Donation to patient 45.000 1.062.656
2018-12-16 Donation to patient 45.000 1.017.656
2018-12-15 Donation to patient 270.000 972.656
2018-12-15 Donation to patient 18.000 702.656
2018-12-15 Donation to patient 45.000 684.656
2018-12-15 Donation to patient 18.000 639.656
2018-12-14 Donation to patient 45.000 621.656
2018-12-14 Donation to patient 90.000 576.656
2018-12-14 Donation to patient 90.000 486.656
2018-12-14 Donation to patient 45.000 396.656
2018-12-14 Donation to patient 45.000 351.656
2018-12-14 Donation to patient 45.000 306.656
2018-12-14 Donation to patient 9.900 261.656
2018-12-14 Donation to patient 90.000 251.756
2018-12-14 Donation to patient 9.000 161.756
2018-12-14 Donation to patient 45.000 152.756
2018-12-14 Donation to patient 27.000 107.756
2018-12-14 Donation to patient 45.006 80.756
2018-12-14 Donation to patient 22.500 35.750
2018-12-13 Donation to patient 146.250 13.250
2018-12-13 Donation to patient 45.000 -133.000
2018-12-13 Donation to patient 90.000 -178.000
2018-12-11 Donation to patient 45.000 -268.000
2018-12-11 Donation to patient 900.000 -313.000
2018-12-11 Donation to patient 180.000 -1.213.000
2018-12-10 Donation to patient 90.000 -1.393.000
2018-12-05 Donation to patient 45.000 -1.483.000
2018-11-28 Donation to patient 9.000 -1.528.000
2018-11-28 Donation to patient 135.000 -1.537.000
2018-11-09 Bantuan obat Mendy week 2 -605.000 -1.672.000
2018-09-21 Bantuan pemeriksaan lab ohp Mendy -1.067.000 -1.067.000

Funded by (56)

Fundraiser

Atau bantu campaign ini dengan menjadi fundraiser. Dana yang kamu kumpulkan akan disalurkan langsung untuk pasien ini.

Partner

Rumah Sakit Umum Pusat Nasional Dr. Cipto Mangunkusumo
Jl. Diponegoro No. 71, Senen, Jakarta Pusat, Daerah Khusus Ibukota Jakarta, Indonesia

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