Khansa, a Biliary Atresia sufferer really needs your help!

Bantu Khansa sekarang

79.592677056277% funded

91929542

funded

23570458

to go

Kisah Khansa

Mother's love is infinite and endless, that's the picture Khansa's sacrifice to her child. Khansa suffers from biliary atresia, a rare bile duct disease that attacks babies only. In biliary atresia, the canal swells and becomes blocked. As a result, bile increases in the liver and causes liver damage. This makes it difficult for the liver to remove toxins in the body. Khansa's body has seen yellow from birth, her urin and feces are also dark yellow.


After a biopsy, it is known that Khansa has biliary cirrhosis. Biliary cirrhosis is a condition when the bile duct in the liver is inflamed and blocked. Because bile plays an important role in food digestion, filtering out bad red blood cells, cholesterol and poisons, if the bile duct is damaged, harmful substances will accumulate in the liver which causes cirrhosis. The doctor diagnosed Khansa with Laennec biliary cirrhosis where there are hardening and enlargement of her liver which caused by malnutrition. Khansa, who is not even one year old yet, experience malnutrition with marasmus type. Marasmus is a condition where a child experiences a deficiency (lack of) energy and protein. Marasmus type of malnutrition is a condition where there is insufficient feeding or poor hygiene. 


Therefore, Khansa needs a liver donor so her health will improve. The mother will be the donor. However, before donating her heart, several laboratory tests (donor screening) are needed, which are quite expensive. Khansa's father earns a minimum wage; while the cost of supporting checks needed can reach tens of millions of rupiah. Furthermore, Khansa must consume certain milk to improve her nutritional status. The price of milk is also beyond the limits of Khansa's parents ability which is Rp. 300,000 / can.


Let's help Khansa to heal!

Patient Updates Information of this patient is not available yet

Rincian Dana

Nutrisi Rp13.500.000
Pemeriksaan Penunjang Rp91.500.000
Biaya Platform & Digital Marketing Pasien Rp10.500.000

Total Rp115.500.000

Read more about WeCare.id Operational Fund

ATRESIA BILIER

Atresia bilier adalah penyakit saluran empedu langka yang hanya menyerang bayi. Saluran empedu pada hati, disebut juga dengan duktus hepatikus, berfungsi untuk menghancurkan lemak, menyerap vitamin larut lemak, serta membawa racun dan produk sisa keluar tubuh.

Pada atresia bilier, saluran tersebut membengkak dan menjadi tersumbat. Akibatnya, cairan empedu meningkat di hati dan menyebabkan kerusakan hati. Hal ini membuat hati sulit membuang racun dalam tubuh.

Ada 2 jenis atresia bilier yaitu fetal dan perinatal. Atresia bilier fetal muncul daat bayi masih di dalam rahim. Atresia bilier perinatal lebih sering terjadi dan tidak disadari hingga 2-4 minggu setelah kelahiran. Beberapa bayi, khususnya yang lahir dengan atresia bilier fetal, juga memiliki kecacatan pada jantung, limpa dan usus.


GIZI BURUK TIPE MARASMUS

Marasmus merupakan keadaan dimana seorang anak mengalami defisiensi energi dan protein. Umumnya kondisi ini dialami masyarakat yang menderita kelaparan. Gizi buruk tipe marasmus adalah suatu keadaan dimana pemberian makanan tidak cukup atau higiene yang jelek.

Marasmus ialah suatu bentuk kurang kalori-protein yang berat. Keadaan ini merupakan hasil akhir dari interaksi antara kekurangan makanan dan penyakit infeksi. Selain faktor lingkungan, ada beberapa faktor lain pada diri anak sendiri yang dibawa sejak lahir, diduga berpengaruh terhadap terjadinya marasmus
Secara garis besar sebab-sebab marasmus ialah sebagai berikut:

  • Pemasukan kalori yang tidak cukup
  • Marasmus terjadi akibat masukan kalori yang sedikit, pemberian makanan yang tidak sesuai dengan yang dianjurkan akibat dari ketidaktahuan orang tua si anak; misalnya pemakaian secara luas susu kaleng yang terlalu encer.
  • Kebiasaan makan yang tidak tepat. Seperti mereka yang mempunyai hubungan orang tua – anak terganggu.
  • Kelainan metabolik, misalnya: renal asidosis, idiopathic hypercalcemia, galactosemia, lactose intolerance.
  • Malformasi kongenital, misalnya: penyakit jantung bawaan, penyakit Hirschprung, deformitas palatum, palatoschizis, micrognathia, stenosis pilorus, hiatus hernia, hidrosefalus, cystic fibrosis pancreas.

Sumber: 
1. https://hellosehat.com/penyakit/atresia-bilier/
2. https://doktersehat.com/gizi-buruk-tipe-marasmus/

Want to know more about this diagnosis? Ask WeCare.id Medical Team

Total disbursement dana untuk pasien: IDR 66.724.839

Detil transaksi pasien:

Date Transaction Amount (IDR) Balance (IDR)
2019-04-19 Donation to patient 180.000 24.311.703
2019-04-19 Donation to patient 9.000 24.131.703
2019-04-17 Donation to patient 90.000 24.122.703
2019-04-17 Donation to patient 45.000 24.032.703
2019-04-17 Donation to patient 90.000 23.987.703
2019-04-17 Donation to patient 90.000 23.897.703
2019-04-17 Donation to patient 90.000 23.807.703
2019-04-17 Donation to patient 90.000 23.717.703
2019-04-17 Donation to patient 90.000 23.627.703
2019-04-17 Donation to patient 45.000 23.537.703
2019-04-17 Donation to patient 45.000 23.492.703
2019-04-17 Donation to patient 45.000 23.447.703
2019-04-17 Donation to patient 45.000 23.402.703
2019-04-17 Donation to patient 45.000 23.357.703
2019-04-17 Donation to patient 27.000 23.312.703
2019-04-17 Donation to patient 27.000 23.285.703
2019-04-17 Donation to patient 27.000 23.258.703
2019-04-17 Donation to patient 27.000 23.231.703
2019-04-17 Donation to patient 27.000 23.204.703
2019-04-17 Donation to patient 27.000 23.177.703
2019-04-16 Donation to patient 1.425.000 23.150.703
2019-04-16 Donation to patient 1.425.000 21.725.703
2019-04-16 Donation to patient 45.000 20.300.703
2019-04-16 Donation to patient 1.425.000 20.255.703
2019-04-16 Donation to patient 1.425.000 18.830.703
2019-04-16 Donation to patient 1.425.000 17.405.703
2019-04-16 Donation to patient 1.425.000 15.980.703
2019-04-16 Donation to patient 45.000 14.555.703
2019-04-16 Donation to patient 45.000 14.510.703
2019-04-16 Donation to patient 45.000 14.465.703
2019-04-16 Donation to patient 45.000 14.420.703
2019-04-16 Donation to patient 45.000 14.375.703
2019-04-16 Donation to patient 45.000 14.330.703
2019-04-16 Donation to patient 45.000 14.285.703
2019-04-16 Donation to patient 45.000 14.240.703
2019-04-16 Donation to patient 45.000 14.195.703
2019-04-16 Donation to patient 45.000 14.150.703
2019-04-16 Donation to patient 45.000 14.105.703
2019-04-15 Donation to patient 9.000 14.060.703
2019-04-14 Donation to patient 45.000 14.051.703
2019-04-13 Donation to patient 11.700 14.006.703
2019-04-13 Donation to patient 9.000 13.995.003
2019-04-13 Donation to patient 90.000 13.986.003
2019-04-13 Donation to patient 9.000 13.896.003
2019-04-13 Donation to patient 22.500 13.887.003
2019-04-13 Donation to patient 90.000 13.864.503
2019-04-13 Donation to patient 18.000 13.774.503
2019-04-12 Donation to patient 90.900 13.756.503
2019-04-12 Donation to patient 9.000 13.665.603
2019-04-12 Donation to patient 9.000 13.656.603
2019-04-11 Donation to patient 180.000 13.647.603
2019-04-10 Donation to patient 45.000 13.467.603
2019-04-10 Donation to patient 270.000 13.422.603
2019-04-09 Donation to patient 450.000 13.152.603
2019-04-09 Donation to patient 52.544 12.702.603
2019-04-09 Bantuan transport & susu Khansa ke-27 -3.228.800 12.650.059
2019-04-08 Donation to patient 900.000 15.878.859
2019-04-08 Donation to patient 216.000 14.978.859
2019-04-06 Donation to patient 9.000 14.762.859
2019-04-05 Donation to patient 90.000 14.753.859
2019-04-05 Donation to patient 18.000 14.663.859
2019-04-05 Donation to patient 900.000 14.645.859
2019-04-05 Donation to patient 9.000 13.745.859
2019-04-05 Donation to patient 9.000 13.736.859
2019-04-04 Donation to patient 45.000 13.727.859
2019-04-04 Donation to patient 900.000 13.682.859
2019-04-04 Donation to patient 90.000 12.782.859
2019-04-03 Donation to patient 90.000 12.692.859
2019-04-03 Donation to patient 90.000 12.602.859
2019-04-02 Donation to patient 90.000 12.512.859
2019-04-02 Donation to patient 18.000 12.422.859
2019-04-02 Donation to patient 90.000 12.404.859
2019-04-02 Donation to patient 45.000 12.314.859
2019-04-02 Donation to patient 9.000 12.269.859
2019-04-02 Donation to patient 225.000 12.260.859
2019-04-02 Donation to patient 900.000 12.035.859
2019-04-02 Donation to patient 9.000 11.135.859
2019-04-02 Donation to patient 9.000 11.126.859
2019-04-02 Donation to patient 900.000 11.117.859
2019-04-02 Donation to patient 9.162 10.217.859
2019-04-02 Donation to patient 45.000 10.208.697
2019-04-02 Donation to patient 15.307 10.163.697
2019-04-02 Donation to patient 135.000 10.148.390
2019-04-02 Donation to patient 9.000 10.013.390
2019-04-02 Donation to patient 18.000 10.004.390
2019-04-02 Donation to patient 90.000 9.986.390
2019-04-02 Donation to patient 135.000 9.896.390
2019-04-02 Donation to patient 45.000 9.761.390
2019-04-02 Donation to patient 90.000 9.716.390
2019-04-02 Donation to patient 45.000 9.626.390
2019-03-31 Donation to patient 34.875 9.581.390
2019-03-30 Donation to patient 45.000 9.546.515
2019-03-29 Donation to patient 180.000 9.501.515
2019-03-25 Bantuan susu & akomodasi Khansa ke-26 -2.437.000 9.321.515
2019-03-23 Donation to patient 45.000 11.758.515
2019-03-21 Donation to patient 9.000 11.713.515
2019-03-20 Donation to patient 22.500 11.704.515
2019-03-18 Bantuan susu & akomodasi Khansa ke-25 -1.484.000 11.682.015
2019-03-18 Donation to patient 18.000 13.166.015
2019-03-17 Donation to patient 90.000 13.148.015
2019-03-16 Donation to patient 90.000 13.058.015
2019-03-16 Donation to patient 90.000 12.968.015
2019-03-16 Donation to patient 90.000 12.878.015
2019-03-16 Donation to patient 90.000 12.788.015
2019-03-16 Donation to patient 90.000 12.698.015
2019-03-14 Donation to patient 18.000 12.608.015
2019-03-12 Bantuan susu Khansa ke-24 -484.000 12.590.015
2019-03-06 Bantuan susu & cek lab Khansa ke-23 -777.000 13.074.015
2019-03-01 Bantuan susu Khansa ke-22 -484.000 13.851.015
2019-03-01 Bantuan cek lab Khansa ke-21 -2.289.000 14.335.015
2019-02-26 Bantuan susu Khansa ke-20 -706.000 16.624.015
2019-02-19 Bantuan susu Khansa ke-19 -962.000 17.330.015
2019-02-13 Bantuan susu Khansa ke-18 -1.230.000 18.292.015
2019-02-13 Bantuan susu & alat medis Khansa ke-17 -945.000 19.522.015
2019-02-11 Bantuan susu Khansa ke-16 -395.000 20.467.015
2019-02-08 Bantuan susu Khansa ke-15 -900.000 20.862.015
2019-02-06 Bantuan cek lab & susu Khansa ke-14 -1.639.500 21.762.015
2019-02-04 Bantuan skrining lab Khansa ke-13 -1.396.000 23.401.515
2019-01-30 Bantuan skrining lab Khansa ke-12 -5.029.000 24.797.515
2019-01-28 Bantuan skrining lab & susu Khansa ke-11 -1.296.729 29.826.515
2019-01-18 Bantuan skrining lab Khansa ke-10 -2.389.000 31.123.244
2019-01-14 Bantuan skrining donor Khansa ke-9 -6.460.000 33.512.244
2019-01-11 Bantuan Skrining Lab Khansa ke-8 -1.525.000 39.972.244
2019-01-09 Donation to patient 162.953 41.497.244
2019-01-09 Bantuan skrining lab Khansa ke-7 -1.755.500 41.334.291
2019-01-08 Bantuan skrining lab Khansa ke-6 -893.000 43.089.791
2019-01-08 Donation to patient 128.953 43.982.791
2019-01-08 Donation to patient 1.021.953 43.853.838
2019-01-08 Donation to patient -893.000 42.831.885
2019-01-02 Donation to patient 100.000 43.724.885
2019-01-02 Donation to patient 200.000 43.624.885
2018-12-31 Donation to patient 1.914.953 43.424.885
2018-12-31 Bantuan skrining lab Khansa ke-5 -3.906.000 41.509.932
2018-12-27 Donation to patient 5.820.953 45.415.932
2018-12-27 Bantuan cek lab Khansa ke-4 -2.767.310 39.594.979
2018-12-21 Donation to patient 225.000 42.362.289
2018-12-19 Donation to patient 8.588.263 42.137.289
2018-12-19 Bantuan screening transplantasi hati Khansa -13.416.000 33.549.026
2018-12-18 Donation to patient 27.000 46.965.026
2018-12-18 Bantuan pemeriksaan lab Ibu Shara A. -4.811.000 46.938.026
2018-12-18 Donation to patient 22.004.263 51.749.026
2018-12-18 Bantuan pemeriksaan Lab Khansa -3.119.000 29.744.763
2018-12-18 Donation to patient 528.000 32.863.763
2018-12-14 Donation to patient 27.000 32.335.763
2018-12-13 Donation to patient 270.000 32.308.763
2018-12-12 Donation to patient 315.000 32.038.763
2018-12-12 Donation to patient 270.000 31.723.763
2018-12-12 Donation to patient 300.000 31.453.763
2018-12-12 Donation to patient 270.000 31.153.763
2018-12-12 Donation to patient 9.000 30.883.763
2018-12-10 Donation to patient 9.000 30.874.763
2018-12-08 Donation to patient 405.000 30.865.763
2018-12-07 Donation to patient 135.000 30.460.763
2018-12-07 Donation to patient 9.000 30.325.763
2018-12-07 Donation to patient 90.000 30.316.763
2018-12-07 Donation to patient 270.000 30.226.763
2018-12-07 Donation to patient 22.500 29.956.763
2018-12-06 Donation to patient 22.135.000 29.934.263
2018-12-06 Donation to patient 90.000 7.799.263
2018-12-06 Donation to patient 90.000 7.709.263
2018-12-06 Donation to patient 270.000 7.619.263
2018-12-06 Donation to patient 45.000 7.349.263
2018-12-06 Donation to patient 225.000 7.304.263
2018-12-05 Donation to patient 90.000 7.079.263
2018-12-05 Donation to patient 45.000 6.989.263
2018-12-05 Donation to patient 225.000 6.944.263
2018-12-05 Donation to patient 13.500 6.719.263
2018-12-05 Donation to patient 9.000 6.705.763
2018-12-05 Donation to patient 115.487 6.696.763
2018-12-05 Donation to patient 9.270 6.581.276
2018-12-05 Donation to patient 45.006 6.572.006
2018-12-05 Donation to patient 27.000 6.527.000
2018-12-05 Donation to patient 450.000 6.500.000
2018-12-05 Donation to patient 9.000 6.050.000
2018-12-05 Donation to patient 90.000 6.041.000
2018-12-05 Donation to patient 180.000 5.951.000
2018-12-05 Donation to patient 90.000 5.771.000
2018-12-05 Donation to patient 45.000 5.681.000
2018-12-05 Donation to patient 180.000 5.636.000
2018-12-05 Donation to patient 90.000 5.456.000
2018-12-05 Donation to patient 180.000 5.366.000
2018-12-05 Donation to patient 450.000 5.186.000
2018-12-05 Donation to patient 9.000 4.736.000
2018-12-05 Donation to patient 450.000 4.727.000
2018-12-05 Donation to patient 180.000 4.277.000
2018-11-23 Donation to patient 50.000 4.097.000
2018-11-23 Donation to patient 50.000 4.047.000
2018-11-22 Donation to patient 350.000 3.997.000
2018-11-22 Donation to patient 750.000 3.647.000
2018-11-19 Donation to patient 216.000 2.897.000
2018-11-18 Donation to patient 90.000 2.681.000
2018-11-15 Donation to patient 450.000 2.591.000
2018-11-14 Donation to patient 90.000 2.141.000
2018-11-12 Donation to patient 180.000 2.051.000
2018-11-09 Donation to patient 22.500 1.871.000
2018-11-09 Donation to patient 450.000 1.848.500
2018-11-08 Donation to patient 180.000 1.398.500
2018-11-08 Donation to patient 22.500 1.218.500
2018-11-06 Donation to patient 45.000 1.196.000
2018-11-06 Donation to patient 180.000 1.151.000
2018-11-06 Donation to patient 27.000 971.000
2018-11-04 Donation to patient 90.000 944.000
2018-11-03 Donation to patient 9.000 854.000
2018-11-02 Donation to patient 135.000 845.000
2018-11-02 Donation to patient 100.000 710.000
2018-11-02 Donation to patient 100.000 610.000
2018-11-01 Donation to patient 270.000 510.000
2018-10-31 Donation to patient 45.000 240.000
2018-10-31 Donation to patient 45.000 195.000
-0001-11-30 Donation to patient 50.000 150.000
-0001-11-30 Donation to patient 100.000 100.000

Funded by (125)

Fundraiser

No fundraiser yet.

Atau bantu campaign ini dengan menjadi fundraiser. Dana yang kamu kumpulkan akan disalurkan langsung untuk pasien ini.

Partner

Rumah Sakit Umum Pusat Nasional Dr. Cipto Mangunkusumo
Jl. Diponegoro No. 71, Senen, Jakarta Pusat, Daerah Khusus Ibukota Jakarta, Indonesia

Search for other patients

DONASI UNIVERSAL

#UNTUKSEMUA (7) - DKI Jakarta
Oleh Medikator Medikator WeCare.id
2.0179068% funded
20179068 funded
979820932 to go
Oleh Medikator Medikator WeCare.id
79.592677056277% funded
91929542 funded
23570458 to go

Prematur, BBLR

Bayi Bu Ati (0) - Jawa Barat
Oleh Medikator Medikator RS Santo Borromeus
29.482037575758% funded
24322681 funded
58177319 to go